Posted on February 16, 2010.
Children with sickle cell anemia support groups / / meetings / time and place? a place where the family gathers and support children. this time to meet and what information they provide to the family regarding sickle cell anemia.
You do not say where you live, but the big cities to the list of all support groups in the Sunday paper, if not useful to call for a major hospital near you ask for Human Resources They have a good group in Dallas TX and Tulsa OK if you're near one of these .. luck ..
You can always ask your doctor.
Especially if the doctor is a hematologist / oncologist.
If you, or never-cell anemia is treated in a comprehensive sickle cell center, then there will be information material there.
There may even be some form of support group.
If you just need an answer or ventilation (about abuse, whatever), you can always go to this site.
sicklecell@yahoogroups.com
I'm going to evacuate people and answer questions with sickle cell disease and / or friends and your family can have.
I am a 40 year old man with sickle cell anemia.
There are single parents with sickle cell disease, parents who raise someone with sickle-cell and single parents with sickle cell disease elevate someone with sickle cell disease.
There are many people out there with sickle cell disease and we try to help answer questions that people need help.
sicklecell@yahoogroups.com
This is a support group, but the comfort of your home.
We have people there 80 years until the teen years in this support group.
As for the information know, the experience is where most information is obtained,
But we have smart people and academics.
There are many, many people with degrees.
I have two degrees (BA in Biology and a BA in Psychology).
It is a medical student and many other wise people affected by the disease.
If you need to be physically in a support group, and more from one yourself, there is always a support group in the larger cities with the hospital dealing with a large population of people with the disease sickle cell disease.
Hope you find the support you need.
Google the keyword (support sickle cell, plus your city). Otherwise, someone in the department of hematology. a teaching hospital could set you right.